Paediatric Sickle cell & Thalassaemia

NMUH is a provider of specialist services for patients with Sickle cell disease, Thalassaemia’s, and other inherited anaemias. Comprehensive care is provided by a Multidisciplinary Team (MDT).  The service provides care for patients locally (Enfield and Haringey, parts of Barnet). As a specialist commissioned service it also provides outreach and specialist care to linked providers within the boundaries of the haemoglobinopathy clinical network. This includes assessment, screening, and treatment of patients from Hertfordshire in Welwyn Gardens, Princess Alexandra and some parts in Essex .

The service has grown due to the number of patients locally and referrals from other local haemoglobinopathy centres.  We have a total of 284 active patients plus some patients who are out of our area that comes to us and require Haemoglobinopathy care.  

We provide service from birth and continue until patients are transferred to the adult team at the age of 16 (19 if they have additional needs). We provide in- patient, out-patient, and community care.  

 

   

Pathways, Services & Referrals

New Births  

Genetic counselling  

Blood test  

Nurse led telephone clinic  

Hydroxycarbamide monitoring  

Blood transfusion (TOP- UP)  

Automated red cell exchange  

Manual exchange  

Trans cranial doppler  

 Advise on Family Support  

Education and teaching for families , schools and communities    

Mental Health Well Being  

 

Referrals should first be discussed with the team on 0208  887 3564    

Paediatric Sickle Cell Referral form  

Meet the Team

 

CLINICAL 

    • Dr Olu Wilkey                      SHT Lead

    •  

      • Dr Reshmy Nair                   Deputy SHT Lead
      • Dr Marilyn Harewood         Haematologist 
        • Albin Bendiola                     Clinical Nurse Specialist
        • Davina Sarfo-Amoako         Clinical Nurse Specialist

         

        ADMIN

        • Kerry O'Brien                        Admin/SHT secretary

        CLINICAL PSYCHOLOGIST

        • Dr Katie Trigg                      Clinical Psychologist
        • Dr Lucy Parkin                     Clinical Psychologist
        • Tomasin Olowosuko            Assistant Psychologist

      Meet the Team

       

       

Research / Audits

  1. NHR Bioresource- Rare Disease
  2. Improving Black Health
  3. Study Of Montelukast in Children- Smile
  4. Sickle eye-4